Date de publication
Géographie
Langue de la ressource
Texte disponible en version intégrale
Open Access / OK to Reproduce
Évalué par des pairs
L’objectif
As part of a community based patient oriented research project, we critically analyze the Strategy for Patient-Oriented Research (SPOR) framework to provide insights into what constitutes safer research with people who use(d) substances.
Constatations/points à retenir
While the SPOR framework includes a range of patient roles, principles and areas for engagement, there are issues and gaps related to essential elements of safe patient-oriented research for people who use substances. These include an individualized focus on patients as partners, lack of recognition of community benefits, power imbalances and distrust due to systemic stigma, engagement as one way capacity building and learning, and lack of accountability for taking action on research findings.
La conception ou méthodologie de recherche
Review of community-based research principles and the SPOR framework, followed by focus groups
